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Author: Shaylee

Living in the Now

Living in the Now

It’s been far too long since I posted an update on Josh’s condition, so here we go, finally. Specialty Clinic Re-Cap As many of you know, at the end of July we made a spur-of-the-moment trip to Michigan. Josh had experienced a serious negative reaction to the medication he was on (Syprine), which caused his symptoms to worsen significantly.  In the days leading up to our trip, Josh’s entire body was shaking constantly, even while lying down. This was a…

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Holding On

Holding On

Warning: these first couple of sections are a bit of a downer, but just hold on. General Update It’s difficult to want to give an update when the news just isn’t what you were hoping it would be. Josh started on Syprine (the original drug he was prescribed in April) about two weeks ago. Although the Galzin (zinc acetate) that he was originally taking was slowly ridding his body of copper, his tremors were not responding to the treatment. Our…

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Labor and Delivery: Let’s Get Real

Labor and Delivery: Let’s Get Real

“Our son came into the world exactly one week early on 9/16/16 at 1:40pm. He was born weighing 8lb 3oz, and measuring 21 inches long. With a head of black hair like his daddy, he is 100% adorable. We absolutely love him and are so happy to have him in our lives.” This is the “birth story” that I originally shared on social media when our son was first born. I think I’m finally ready to share a little more….

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Birthday Breakfast Ideas

Birthday Breakfast Ideas

Birthday breakfast, birthday breakfast, birthday breakfast! Yay! Seriously though, I am a big fan of the birthday breakfast. We typically go out for our birthday dinners, but breakfast, we do at home. I love this because not only do I love breakfast food, but I love being able to eat my birthday breakfast in my pajamas and at my own (lazy) speed. Plus, I can ensure that I get just what I want to eat, every time. Now, there are…

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Waiting, Worrying: Josh’s Diagnosis

Waiting, Worrying: Josh’s Diagnosis

*I highly recommend reading Josh’s post Wilson Disease: My Diagnosis, before reading this post. His post more clearly covers the process we went through, while mine is more rambling and full of feelings. Waiting for a diagnosis for yourself, and waiting for a diagnosis for a loved one are two entirely different experiences. I experienced a little bit of the stress and anxiety of the first situation when I was just over eight months pregnant. Unbeknownst to me or my doctors,…

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Oregon Coast: A Few of My Favorite Things

Oregon Coast: A Few of My Favorite Things

Growing up in Oregon, one of my favorite family vacation destinations was the Oregon Coast. Although what we did during each visit to the coast varied, there are a few specific things that I always looked forward to doing. I’m definitely not an expert on the Oregon Coast and there are so many more things to do there besides those that I mention below. Rather than providing a detailed travel guide, I simply want to share some of my favorite things to…

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Anniversary Gift Ideas

Anniversary Gift Ideas

I really love having any reason whatsoever to celebrate and give gifts, and our wedding anniversary is no exception. However, rather than buy each other an anniversary gift, Josh and I prefer to make each other something unique and personal. Giving a gift that you made yourself is not only fun, but more meaningful as well. Let’s be honest though, coming up with a creative gift idea is difficult. I will admit that I have googled “DIY anniversary gifts for…

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