Last two months
Next six months
I also saw Dr. Askari in December at the speciality clinic at U of M. They expect me to be able to participate in a clinical trial for Tetrathiomolybdate (TM). I don’t really need it now that I am through the worst part of the initial treatment. However, I am happy to support the trial since TM is a much better option for people with neurological symptoms of Wilson Disease. I expect to recover fully in the next year or so, but I am happy with my progress even if my symptoms don’t continue to improve. My next appointment with Dr. Askari is in June, and I hope to reduce my appointments down to once a year after that.
I actually feel very lucky to have experienced all of this. Shaylee and I have learned so much and our relationship has been strengthened even more over the past ten months. My situation is very unique in that I had pretty much lost my ability to do anything. Now a few months later, I have gained it all back. My goal now is that I continue to use everything that I have learned this past year. Shaylee was so great and taught me how to really be devoted to our family and I will spend the rest of my life trying to show her that same devotion.
Shaylee started video taping me to track my progress back in August, so I thought it would be good to show a before and after video (even though the video quality isn’t great). This will probably be the last Wilson Disease post we do for a while and I wanted to thank everyone for all of their support and prayers during the last year.