Taken for Granted
It is easy to take your health for granted, especially when you’ve never experienced major health issues. It’s funny how when we get sick, we feel as if we would give anything to be healthy again. Once that health comes it is easy to forget how much you longed for it. Then there are ailments that I have never experienced and may never experience. One good example is being paralyzed. It is so wonderful just to be able to walk. Our health is something that we should be grateful for every day.
I have been thinking about this a lot lately. Some things are so simple that we don’t really think about them much. However, if lost, they become miracles to us. Things like drinking from (or even holding) a cup without spilling, making a meal for yourself, walking in a straight line, holding your son without worrying that you will fall or drop him. It is frustrating when you have lived your entire life being able to do whatever you want only to lose that so quickly. Despite this, I still have a lot to be grateful for.
I am so grateful for a wonderful family. Shaylee has been very supportive through all of this as she spends most of her day taking care of me and our son. Our amazing son has also brought so much joy to our lives. Our parents have also come to visit from out of state to help out when they can. I am grateful for literature and my ability to read. I am grateful that I can still walk even though it is difficult. I am grateful for communication, a loving wife who listens to me, and the technology that allows me to keep in touch with friends and family that live far away. I am grateful for an understanding employer that has been flexible with me through this trial. Also, I am grateful for cheese, and that it is low in copper.
The Gospel of Jesus Christ
Anyone who has read my other posts about this experience will know that I am religious. During this time it has been easy to think, “Haven’t I been patient enough? Don’t I have enough faith for God to heal me?” I have realized that it’s not about having faith that God will heal me. Rather it is about having the faith that he can heal me. I need to trust that God knows what is best for me and my family and be ready to accept His will.
A Quick Update
My lab results have been looking good, but unfortunately, my symptoms have been getting worse. I have lost most of the ability to use my hands because the tremors have gotten so bad. My legs have started shaking and it is difficult to walk. Also, my breath is really shaky so it can be hard to talk, especially if I am standing. After my last appointment, we decided to try a different treatment that will hopefully work a little bit faster. My doctor appealed the denial of the Syprine and it was approved, so after working with a specialty pharmacy and a patient assistance program, we should be able to get it later this week.