Only Good News

Only Good News

I feel like a normal person again. Since our last post my hands have gotten significantly better. I can use knives again… and feed myself… and clip my fingernails. I get excited about every little bit of progress. Sometimes it seems like a dream when I think about how bad I was, and I feel like I was being dramatic back then because of how good I am doing now. Last two months I started working full time again in November. It…

Read More Read More

Living in the Now

Living in the Now

It’s been far too long since I posted an update on Josh’s condition, so here we go, finally. Specialty Clinic Re-Cap As many of you know, at the end of July we made a spur-of-the-moment trip to Michigan. Josh had experienced a serious negative reaction to the medication he was on (Syprine), which caused his symptoms to worsen significantly.  In the days leading up to our trip, Josh’s entire body was shaking constantly, even while lying down. This was a…

Read More Read More

Holding On

Holding On

Warning: these first couple of sections are a bit of a downer, but just hold on. General Update It’s difficult to want to give an update when the news just isn’t what you were hoping it would be. Josh started on Syprine (the original drug he was prescribed in April) about two weeks ago. Although the Galzin (zinc acetate) that he was originally taking was slowly ridding his body of copper, his tremors were not responding to the treatment. Our…

Read More Read More

Gratitude and Taking Health for Granted

Gratitude and Taking Health for Granted

Taken for Granted It is easy to take your health for granted, especially when you’ve never experienced major health issues. It’s funny how when we get sick, we feel as if we would give anything to be healthy again. Once that health comes it is easy to forget how much you longed for it. Then there are ailments that I have never experienced and may never experience. One good example is being paralyzed. It is so wonderful just to be able to…

Read More Read More

Labor and Delivery: A Spectator

Labor and Delivery: A Spectator

I thought I would also share my experience from when our son was born, so that we have a more complete record of Shaylee’s labor and delivery. However, I will warn you that this is not nearly as detailed or exciting as her story. Early Labor On September 15, 2016 Shaylee finally went into labor. We were pretty ready for our son to come at this point. So Shaylee was trying some techniques on her own to further the process along. I…

Read More Read More

Labor and Delivery: Let’s Get Real

Labor and Delivery: Let’s Get Real

“Our son came into the world exactly one week early on 9/16/16 at 1:40pm. He was born weighing 8lb 3oz, and measuring 21 inches long. With a head of black hair like his daddy, he is 100% adorable. We absolutely love him and are so happy to have him in our lives.” This is the “birth story” that I originally shared on social media when our son was first born. I think I’m finally ready to share a little more….

Read More Read More

Wilson Disease: Update

Wilson Disease: Update

Three weeks after my diagnosis I finally started a treatment. Initially, the treatment for Wilson Disease seemed simple and straightforward. However, after digging a little deeper, we realized that it is not so simple. There are some pretty serious risks associated with all of the options for treatment, and it definitely didn’t help that my insurance was not cooperating either. As you can see from the image above, we are still optimistic and happy to start on the road to…

Read More Read More

Birthday Breakfast Ideas

Birthday Breakfast Ideas

Birthday breakfast, birthday breakfast, birthday breakfast! Yay! Seriously though, I am a big fan of the birthday breakfast. We typically go out for our birthday dinners, but breakfast, we do at home. I love this because not only do I love breakfast food, but I love being able to eat my birthday breakfast in my pajamas and at my own (lazy) speed. Plus, I can ensure that I get just what I want to eat, every time. Now, there are…

Read More Read More

Brandon Sanderson Humble Book Bundle

Brandon Sanderson Humble Book Bundle

Note: This deal is over. I would recommend starting with the Mistborn series if you want to get into Brandon Sanderson’s books. You can buy the entire trilogy by clicking here. You can also click here to get the first book only. For those of you who don’t know, Shaylee and I are big fans of Brandon Sanderson. About two years ago a friend of Shaylee’s lent her a book called Mistborn. As she read it she began telling me…

Read More Read More

Wilson Disease: The Treatment

Wilson Disease: The Treatment

All I Need is a Prescription Apparently, getting a diagnosis is only half the battle. This past week has probably been more stressful than any of the previous five. I wasn’t even able to talk to someone about setting up an appointment until this past Tuesday (4/11/17), and they initially told me that the first opening was in May. It makes sense that the receptionist would just look for the first available appointment, but waiting another month for an appointment was…

Read More Read More